We’ve been investing in scientific research since 1990

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We've funded more than 2700 projects and 1600 researchers to give people affected by a rare genetic condition a new hope.

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A new hope for Isaac

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When Isaac was born, his parents Andrew and Ellen we're worried that their baby was growing too fast. But now they have a new hope.

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Our method

How we fund research?

660,3 Millions of euros invested
1.720 Researchers
2.960 Projects funded

What we do

Our mission

We were made to give people affected by a rare genetic condition an answer – treatment for their condition. Rare genetic conditions are not statistically relevant when considered individually, but the same can’t be said about a person’s life.

Projects funded

We support the best projects chosen using a rigorous and transparent selection process, following consultation with an internationally-renowned committee of qualified scientists.

Institutes

We have founded two institutes that are global centres of excellence in the study of rare genetic conditions: The San Raffaele Telethon Institute For Gene Therapy in Milan and Telethon Institute of Genetics and Medicine in Pozzuoli (NA).

Lorenzo wants to go far

Patients

“I can’t walk”. When you hear those words on the lips of a child below the age of three, it’s hard to turn your back and walk away. Imagine you’re the child’s parents. The words came out with the composed calmness of a fact of nature.

News

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12.09.23

Fondazione Telethon and Orchard Therapeutics complete transfer of marketing authorization of Strimvelis for ADA-SCID in Europe

Una nuova sfida per Telethon, che amplia i confini della propria missione

From Telethon Foundation

20.04.23

Fondazione Cariplo and Fondazione Telethon: 21 projects funded with 5 million euros for basic research in rare diseases

The best projects of the 2022 call for basic research from all over Italy to study still obscure portions of our genetic heritage have been funded. The collaboration between Fondazione Cariplo and Fondazione Telethon continues: 21 new basic research projects have been funded for a total of about 5 million euros. The goal of the […]

From Telethon Foundation

20.02.23

San Raffaele-Telethon Institute receives European funds to study how blood is formed

Andrea Ditadi awarded an ERC Consolidator Grant worth 2 million euro

From Research

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